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LONG LIFE Family Study (LLFS)

Established in 2005, "the Long Life Family Study (LLFS) is an international collaborative study of the genetics and familial components of exceptional survival, longevity, and healthy aging. Families were recruited through elderly probands (generally in their 90s) who self-reported on the survival history of their parents and siblings, and on the basis of this information, families which showed clustering of exceptional survival were recruited." (https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000397.v1.p1)

Additional Information

  • Principal Investigator(s)
  • Michael Province, Washington University School of Medicine
  • Partner Organization Affiliation
  • Washington University School of Medicine (St. Louis, MO)
  • Grant No.
  • U01AG023749
  • Partnered with MedRIC In
  • 2017

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Cohort Size

Information icon.

~3,100

Partner Data Categories

Disclaimer

These data categories provide a MedRIC overview of the data in LLFS's data documentation, not an exhaustive catalog. As such, the partner's dataset may contain additional information not presented in this list.
  • Biological Markers
  • Blood Pressure, Metabolic Measures
  • Demographic and Familial Characteristics
  • Age, Family Medical History, Phenotypes, Sex
  • Functional Capacities
  • Grip Strength, Pulmonary Function
  • Health Circumstances
  • Longevity of Life
  • Psychosocial and Lifestyle Factors
  • Depression

CMS Files Available to Request?

Not Yet

Years

CMS File Type

Encryption Level (Standard, Geographic, and/or Provider)

1991-2012

Denominator (DN) Research Files

Standard

1999-2016

Home Health Outcome and Assessment Information Set (OASIS) Research Files

Standard

1999-2016

Long-Term Care Minimum Data Set (MDS) Research Files

Standard

2013-2016

Master Beneficiary Summary File (MBSF) Research Files

Standard

1991-2016

Parts A & B Research Files

Standard

2006-2016

Part D Drug Event (PDE) Research Files

Standard